Younger middle-aged adults with amyotrophic lateral sclerosis and their family caregivers: an exploration of their experiences and perspectives – a study protocol

Please join us …

When: Thursday, September 29, 2022, 12–1 p.m.

Where: Join Zoom Meeting https://us06web.zoom.us/j/82435258546, Meeting ID: 824 3525 8546. Meeting password: 1234 OR in person in G Wing, 1st Floor (Linton Boardroom)

Who: Andrea Parks, MD, FRCPC; Neuromuscular Fellow, Sunnybrook Health Sciences Centre

Topic: Younger middle-aged adults with amyotrophic lateral sclerosis and their family caregivers: an exploration of their experiences and perspectives – a study protocol

Learning Objectives:

Outline a scoping review protocol to fully map what is currently known about the impact of age and life stage on the experience of amyotrophic lateral sclerosis (ALS)
Describe a plan for qualitative inquiry to further understand the experiences of individuals diagnosed with ALS in younger middle-age and their family caregivers including:
- A phenomenological study seeking to understand the illness and care experiences of younger middle-aged adults with ALS
- A grounded theory study exploring the social processes that underpin family caregivers’ experiences following an ALS diagnosis in a family member