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Data Holding PIA Summaries

Below are the Privacy Impact Assessments (PIAs) related to ICES Data Holdings approved by the Privacy & Legal Office. The PIAs are listed by the date of approval.

  1. ICES Data Holding: IPHCO
    Completion Date: October 18, 2024
    Summary: The purpose of this PIA is to assess a request for ICES to collect data from Indigenous partners.
  1. ICES Data Holding: GEMINI
    Completion Date: August 1, 2024
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with the proposed collection of additional variables from Unity Health Toronto for GEMINI.
  2. ICES Data Holding: IPHCO
    Completion Date: August 13, 2024
    Summary: The purpose of this Privacy Impact Assessment was to assess the privacy implications associated with a request for ICES to collect data from an Indigenous partner.
  1. ICES Data Holding: CPSO
    Completion Date: July 4, 2024
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with a proposed controlled use data holding consisting of publicly available data from the College of Physicians and Surgeons of Ontario’s Register.
  2. ICES Data Holding: ArcGIS
    Completion Date: July 15, 2024
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ongoing use of ArcGIS software, specifically, to evaluate software licensing issues, data documentation, and attribution compliance.
  3. ICES Data Holding: ORGD
    Completion Date: July 16, 2024
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with renewing ICES’ data sharing relationship with the Ontario government for ORGD, including expanding uses of ORGD for third party research supported by ICES.
  4. ICES Data Holding: Synthetic Data
    Completion Date: July 16, 2024
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with creation of synthetic cohorts of patients based on real cohorts of patients created using personal information contained in the ICES data holdings RPDB, DAD, and NACRS.
  5. ICES Data Holding: ESAS-R+
    Completion Date: July 17, 2024
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with a proposed amendment to the ICES data holding ESAS, which involves the collection of additional variables from Ontario Health.
  1. ICES Data Holding: HAIDAP
    Completion Date: June 12, 2024
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with moving backup of its HAIDAP data from HPC4Health to Microsoft Azure.
  2. PIA Title: Population-Based Study to Determine the Appropriateness and Determinants of Antibiotic Use in Primary Care for Migrants in Canada
    Completion Date: June 27, 2024
    Type: To request permission to conduct a new ICES Project
  3. PIA Title: The risk of hyperglycemia and new-onset diabetes among users of antimuscarinic and beta3-adrenergic receptor medications: a cohort study
    Completion Date: June 27, 2024
    Type: To request permission to conduct a new ICES Project
  4. PIA Title: COVID-19 Impacts on Breast Cancer Screening and Care in the Caribbean and Marginalized Communities in Ontario
    Completion Date: June 27, 2024
    Type: To amend approval for an existing ICES Project
  5. PIA Title: Non-tuberculous mycobacteria infection in organ transplant recipients: Outcomes and health resource utilization
    Completion Date: June 27, 2024
    Type: To request permission to conduct a new ICES Project
  6. PIA Title: Evaluating Classical Radioresistance Definitions Within Brain Metastases
    Completion Date: June 26, 2024
    Type: To request permission to conduct a new ICES Project
  7. PIA Title: Cardiovascular-metabolic Disease in Asian Populations Relocated Abroad (CV-DIASPORA)
    Completion Date: June 26, 2024
    Type: To amend approval for an existing ICES Project
  8. PIA Title: A new eGFR equation – exploring the potential impact on nephrology care in Ontario
    Completion Date: June 26, 2024
    Type: To amend approval for an existing ICES Project
  9. PIA Title: Incidence of cancer, stage at diagnosis, and cancer-specific mortality among people with recent onset psychotic disorder
    Completion Date: June 26, 2024
    Type: To amend approval for an existing ICES Project
  10. PIA Title: Outpatient care after non-fatal opioid overdose
    Completion Date: June 25, 2024
    Type: To request permission to conduct a new ICES Project
  11. PIA Title: Impact of the COVID-19 pandemic on obstetrical care and maternal, perinatal and early childhood outcomes in Ontario
    Completion Date: June 25, 2024
    Type: To amend approval for an existing ICES Project
  12. PIA Title: Neighbourhood Walkability and Diffuse Large B-cell Lymphoma: A Population-based Study
    Completion Date: June 24, 2024
    Type: To request permission to conduct a new ICES Project
  13. PIA Title: Predictors for Timing of Insulin Pump Initiation Among Individuals with Type 1 Diabetes in Ontario, Canada
    Completion Date: June 21, 2024
    Type: To request permission to conduct a new ICES Project
  14. PIA Title: MedsCheck Use in Ontario
    Completion Date: June 21, 2024
    Type: To amend approval for an existing ICES Project
  15. PIA Title: The Montfort Postnatal Care at Home (MPCH) Program: A comparison with hospital postnatal care
    Completion Date: June 21, 2024
    Type: To request permission to conduct a new ICES Project
  16. PIA Title: Congenital syphilis: Evaluating the Fidelity and Reach of Enhanced Prenatal Syphilis Screening Recommendations in Ontario
    Completion Date: June 20, 2024
    Type: To request permission to conduct a new ICES Project
  17. PIA Title: Outcomes of stereotactic body radiation therapy for de novo metastatic breast cancer (SBRT)
    Completion Date: June 19, 2024
    Type: To request permission to conduct a new ICES Project
  18. PIA Title: Symptom burden in gynecologic cancer patients during primary treatment and in the first 18m after diagnosis
    Completion Date: June 19, 2024
    Type: To amend approval for an existing ICES Project
  19. PIA Title: Sex differences in the management of type B aortic dissection
    Completion Date: June 19, 2024
    Type: To request permission to conduct a new ICES Project
  20. PIA Title: Outcomes of first line treatment regimens for MM
    Completion Date: June 19, 2024
    Type: To request permission to conduct a new ICES Project
  21. PIA Title: The Impact of SDOH on Lung and Esophageal Cancer Stage, Receipt of Treatment, and Post-Operative Outcomes in Ontario, Canada
    Completion Date: June 19, 2024
    Type: To request permission to conduct a new ICES Project
  22. PIA Title: Preventing Discharge to No Fixed Address v.2
    Completion Date: June 19, 2024
    Type: To amend approval for an existing ICES Project
  23. PIA Title: Chronic conditions in individuals with disabilities
    Completion Date: June 18, 2024
    Type: To request permission to conduct a new ICES Project
  24. PIA Title: Characteristics associated with sustained provision of methadone take-home doses
    Completion Date: June 18, 2024
    Type: To amend approval for an existing ICES Project
  25. PIA Title: Impact of adherence to non-pharmaceutical interventions on risk of SARS-CoV-2 infection in children
    Completion Date: June 14, 2024
    Type: To request permission to conduct a new ICES Project
  26. PIA Title: Towards Equity in Burn Recovery: Evaluating the Impact of Primary Care Access on Long-­Term Health Outcomes After Severe Burn Injury
    Completion Date: June 14, 2024
    Type: To amend approval for an existing ICES Project
  27. PIA Title: Improving Equitable Access to Virtual Care and Investigating the Impact of Virtual Care on Opioid Prescription for Adults with Knee Osteoarthritis
    Completion Date: June 14, 2024
    Type: To request permission to conduct a new ICES Project
  28. PIA Title: Inequities in primary care outcomes among immigrants during the primary care crisis in Ontario: a repeat cross-sectional study
    Completion Date: June 13, 2024
    Type: To request permission to conduct a new ICES Project
  29. PIA Title: Patient Contact Pilot Study: Pre-Pilot Exploratory Analyses
    Completion Date: June 13, 2024
    Type: To amend approval for an existing ICES Project
  30. PIA Title: Morbidity and mortality of bacterial meningitis in Ontario
    Completion Date: June 12, 2024
    Type: To request permission to conduct a new ICES Project
  31. PIA Title: The impact of positive airway pressure therapy initiation on chronic benzodiazepine drug use
    Completion Date: June 11, 2024
    Type: To request permission to conduct a new ICES Project
  32. PIA Title: Validation of a New Cancer-specific Heart Failure Risk Score
    Completion Date: June 11, 2024
    Type: To request permission to conduct a new ICES Project
  33. PIA Title: Association of Clinical Factors and Post-Sepsis Outcomes
    Completion Date: June 11, 2024
    Type: To request permission to conduct a new ICES Project
  34. PIA Title: Describing maternal and reproductive health for citizens of the Métis Nation of Ontario: a retrospective, population-based cohort study
    Completion Date: June 11, 2024
    Type: To request permission to conduct a new ICES Project
  35. PIA Title: The risk of epilepsy associated with ischemic stroke among adults with cancer
    Completion Date: June 7, 2024
    Type: To request permission to conduct a new ICES Project
  36. PIA Title: Unlocking our data: Creation of a Robust Dataset for the Real-World Clinical and Economic Evaluation of Lymphoma Management
    Completion Date: June 7, 2024
    Type: To amend approval for an existing ICES Project
  37. PIA Title: Evaluation of pharmacist prescribing of topical products (PPTP)
    Completion Date: June 7, 2024
    Type: To request permission to conduct a new ICES Project
  38. PIA Title: Palliative Care for Patients with Heart Failure
    Completion Date: June 7, 2024
    Type: To amend approval for an existing ICES Project
  39. PIA Title: Clinical indications associated with opioid initiation among First Nations in Ontario
    Completion Date: June 6, 2024
    Type: To request permission to conduct a new ICES Project
  40. PIA Title: Comparative Effectiveness and Safety of Low-Dose Versus Standard-Dose SGLT2 Inhibitors in Heart Failure Management
    Completion Date: June 6, 2024
    Type: To request permission to conduct a new ICES Project
  41. PIA Title: Health System Impacts of Priority Medications Reimbursed by the Ontario Public Drug Program
    Completion Date: June 6, 2024
    Type: To amend approval for an existing ICES Project
  42. PIA Title: Pediatric Outcomes of Children Whose Mothers Experience Violent Injury
    Completion Date: June 6, 2024
    Type: To request permission to conduct a new ICES Project
  43. PIA Title: Exploring the rate of MNO citizens accessing the healthcare system for a dental problem not associated with trauma
    Completion Date: June 6, 2024
    Type: To request permission to conduct a new ICES Project
  44. PIA Title: Mode of operative delivery in the second stage of labour and risk of subsequent spontaneous preterm birth
    Completion Date: June 6, 2024
    Type: To request permission to conduct a new ICES Project
  45. PIA Title: Selective Decontamination of the Digestive Tract in the Intensive Care Unit (SuDDICU): Cost-Effectiveness and Ecology Analysis
    Completion Date: June 6, 2024
    Type: –
  46. PIA Title: Epidemiology and liver-related outcomes of harmful alcohol use among adolescents and young adults
    Completion Date: June 5, 2024
    Type: To amend approval for an existing ICES Project
  47. PIA Title: Long-Term Kidney Outcomes in Children and Adolescents Diagnosed with Hypertension in Ontario: A Propensity-Matched Cohort Study
    Completion Date: June 5, 2024
    Type: To request permission to conduct a new ICES Project
  48. PIA Title: The association between maternal health status and child growth and cardiometabolic risk outcomes
    Completion Date: June 5, 2024
    Type: To request permission to conduct a new ICES Project
  49. PIA Title: Leveraging healthcare administrative databases to identify older adults at higher risk of adverse events: a step toward personalized medicine
    Completion Date: June 4, 2024
    Type: To request permission to conduct a new ICES Project

 

  1. ICES Data Holding: Internal Abstraction (REDCap)
    Completion Date: May 22, 2024
    Summary: The purpose of this Privacy Impact Assessment is to evaluate the administrative, technological, and physical controls applicable to internal abstraction at ICES.
  2. PIA Title: Reintervention after primary surgical management of female stress urinary incontinence
    Completion Date: May 31, 2024
    Type: To request permission to conduct a new ICES Project
  3. PIA Title: Dementia Outcomes in Patients with Heart Disease
    Completion Date: May 31, 2024
    Type: To request permission to conduct a new ICES Project
  4. PIA Title: Early evaluation of the minor ailment prescribing service: uptake, equity, and patient-provider experiences of the service of Ontario.
    Completion Date: May 31, 2024
    Type: To request permission to conduct a new ICES Project
  5. PIA Title: Impact of vaginal estrogen on clinical outcomes in postmenopausal women with UTIs after discharge
    Completion Date: May 31, 2024
    Type: To request permission to conduct a new ICES Project
  6. PIA Title: Care after B-type natriuretic peptide testing in Ontario
    Completion Date: May 31, 2024
    Type: To request permission to conduct a new ICES Project
  7. PIA Title: Effectiveness of MedsCheck Diabetes in Ontario: A Target Trial Emulation using Administrative Data
    Completion Date: May 31, 2024
    Type: To amend approval for an existing ICES Project
  8. PIA Title: Radiation induced cerebrovascular events following radiation therapy for head and neck cancer
    Completion Date: May 31, 2024
    Type: To request permission to conduct a new ICES Project
  9. PIA Title: School-based interventions to mitigate the tripledemic: Simulation-based evidence to guide high-impact public health and environmental measures
    Completion Date: May 30, 2024
    Type: To amend approval for an existing ICES Project
  10. PIA Title: A retrospective population-based descriptive study of outcomes in Waldenstrom Macroglobulinemia based on registry data in Ontario
    Completion Date: May 29, 2024
    Type: To request permission to conduct a new ICES Project
  11. PIA Title: Understanding the Heightened Amputation Risk Among People Experiencing Homelessness: A Population-based Cohort Study
    Completion Date: May 29, 2024
    Type: To amend approval for an existing ICES Project
  12. PIA Title: Obstetrical Outcomes in Gestational Carrier Pregnancies
    Completion Date: May 29, 2024
    Type: To amend approval for an existing ICES Project
  13. PIA Title: Evaluating the Safety and Effectiveness of Evolving Methadone Prescribing Guidance
    Completion Date: May 29, 2024
    Type: To amend approval for an existing ICES Project
  14. PIA Title: Optimal clinical and geographic placement of integrated community health services centres (ICHSCs)
    Completion Date: May 28, 2024
    Type: To amend approval for an existing ICES Project
  15. PIA Title: Short-term and long-term outcomes of patients visiting the emergency department for double vision
    Completion Date: May 27, 2024
    Type: To request permission to conduct a new ICES Project
  16. PIA Title: Anti-seizure medication exposure during pregnancy and offspring neurodevelopmental outcomes
    Completion Date: May 24, 2024
    Type: To request permission to conduct a new ICES Project
  17. PIA Title: Inequities in The Delivery of Oncology Care for Women with Breast Cancer in Ontario, Canada – A Real-World Data Study
    Completion Date: May 24, 2024
    Type: To request permission to conduct a new ICES Project
  18. PIA Title: Effects of Mobile Text Intervention on Transitions of Care and Outcomes after Hospitalization with ACS – The TEACH Pilot Randomized trial
    Completion Date: May 23, 2024
    Type: To amend approval for an existing ICES Project
  19. PIA Title: Infective Endocarditis Treatment and Outcomes in Persons Who Inject Drugs
    Completion Date: May 22, 2024
    Type: To request permission to conduct a new ICES Project
  20. PIA Title: Risk of Pediatric and Adolescent Cancer Associated with Medical Imaging
    Completion Date: May 22, 2024
    Type: To amend approval for an existing ICES Project
  21. PIA Title: Subsequent Morbidity After a Concussion and a (K)rash (SMACK)
    Completion Date: May 21, 2024
    Type: To request permission to conduct a new ICES Project
  22. PIA Title: The association between initial choice of angiotensin antagonist for heart failure with adverse outcomes
    Completion Date: May 21, 2024
    Type: To request permission to conduct a new ICES Project
  23. PIA Title: Identifying Disparities in Equitable Access to Virtual Care
    Completion Date: May 21, 2024
    Type: To amend approval for an existing ICES Project
  24. PIA Title: Sex Differences in Access to Kidney Transplantation
    Completion Date: May 17, 2024
    Type: To request permission to conduct a new ICES Project
  25. PIA Title: Using ICES data to support Ontario Immunization Advisory Committee/Immunization & Vaccine Preventable Diseases operations at Public Health Ontario
    Completion Date: May 17, 2024
    Type: To amend approval for an existing ICES Project
  26. PIA Title: Trends in the usage of semaglutide (Ozempic®) and alternative agents during the global drug shortage: a population-based study
    Completion Date: May 14, 2024
    Type: To request permission to conduct a new ICES Project
  27. PIA Title: Disability and sexual and reproductive health
    Completion Date: May 14, 2024
    Type: To amend approval for an existing ICES Project
  28. PIA Title: Development of prediction models for patient centered outcomes in GI cancer patients
    Completion Date: May 13, 2024
    Type: To amend approval for an existing ICES Project
  29. PIA Title: Enhanced mental health surveillance in community care and long-term care settings
    Completion Date: May 10, 2024
    Type: To request permission to conduct a new ICES Project
  30. PIA Title: MedsCheck Use in Ontario
    Completion Date: May 10, 2024
    Type: To request permission to conduct a new ICES Project
  31. PIA Title: Maternal hypothyroidism in pregnancy and subsequent cardiometabolic outcomes in offspring
    Completion Date: May 9, 2024
    Type: To request permission to conduct a new ICES Project
  32. PIA Title: Early uptake of liporotein(a) in Ontario
    Completion Date: May 8, 2024
    Type: To request permission to conduct a new ICES Project
  33. PIA Title: Impact of pregnancy on trajectories of CV risk factors in women with and without adverse pregnancy outcomes
    Completion Date: May 8, 2024
    Type: To request permission to conduct a new ICES Project
  34. PIA Title: Association of the TAVR Wait Times’ Differences for Severe Aortic Stenosis Patients and Concomitant Depression and Outcomes
    Completion Date: May 8, 2024
    Type: To request permission to conduct a new ICES Project
  35. PIA Title: Health surveillance of chronic conditions in the James and Hudson Bay Region
    Completion Date: May 8, 2024
    Type: To amend approval for an existing ICES Project
  36. PIA Title: The CART Mife-Outcomes study: Relating Canada’s unique mifepristone regulations to health systems outcomes, costs, and access to medical abortion
    Completion Date: May 7, 2024
    Type: To amend approval for an existing ICES Project
  37. PIA Title: Immune-related disorders in adolescence and future risk of endometriosis: A population-based cohort study
    Completion Date: May 6, 2024
    Type: To amend approval for an existing ICES Project
  38. PIA Title: Disability and sexual and reproductive health
    Completion Date: May 6, 2024
    Type: To amend approval for an existing ICES Project
  39. PIA Title: Peripartum mental illness in multiple sclerosis: incidence, prevalence and risk factors
    Completion Date: May 6, 2024
    Type: To amend approval for an existing ICES Project
  40. PIA Title: Improving Prescription of and Adherence to Guideline-Recommended Cardiovascular Medications to Ontarians with Peripheral Artery Disease
    Completion Date: May 3, 2024
    Type: To request permission to conduct a new ICES Project
  41. PIA Title: Sex differences in the risk of depression and anxiety among adult survivors of out-of-hospital cardiac arrest
    Completion Date: May 3, 2024
    Type: To amend approval for an existing ICES Project
  42. PIA Title: Generating data-driven policy solutions for Ontario’s primary care crisis
    Completion Date: May 3, 2024
    Type: To request permission to conduct a new ICES Project
  43. PIA Title: Maternal Autism and Pregnancy Study
    Completion Date: May 2, 2024
    Type: To request permission to conduct a new ICES Project
  44. PIA Title: Long-term outcomes after endovascular thrombectomy
    Completion Date: May 2, 2024
    Type: To amend approval for an existing ICES Project
  45. PIA Title: Variability across Ontario’s Regional Renal Programs in the rate of steps completed toward receiving a kidney transplant
    Completion Date: May 2, 2024
    Type: To amend approval for an existing ICES Project

 

  1. ICES Data Holding: NHTG
    Completion Date: April 22, 2024
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications of the proposed collection of Northern Health Travel Grant data from the Ministry of Health for the purpose of creating an ICES data holding to be used for conducting analysis and compiling statistical information with respect to the evaluation, planning and monitoring of the health system.
  2. ICES Data Holding: WTIS
    Completion Date: April 1, 2024
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications of the proposed amendment to the ICES data holding WTIS, consisting of collection and use of Alternate Level of Care (ALC) data from Ontario Health to incorporate the ALC data into WTIS.
  3. ICES Data Holding: DATIS
    Completion Date: April 16, 2024
    Summary: The purpose of this PIA is to assess the privacy risks associated with proposed changes to the ICES controlled use data holding DATIS, consisting of removing variables, and to provide additional information on existing variables collected for DATIS.
  4. PIA Title: Breast Cancer Brain Metastasis: Improving Clinical Understanding and Analysis by Applying Artificial Intelligence (AI)-based tools – AI-BCBM
    Completion Date: April 29, 2024
    Type: To amend approval for an existing ICES Project
  5. PIA Title: Regional Analyses of Sexual Assault Survivors Reporting to Ontario Hospitals
    Completion Date: April 26, 2024
    Type: To amend approval for an existing ICES Project
  6. PIA Title: Investigation of Access to Primary Care in Rural and Northern Ontario
    Completion Date: April 26, 2024
    Type: To request permission to conduct a new ICES Project
  7. PIA Title: Examining Regional Variation in Post-Healthcare Outcomes for Sexual Assault Survivors
    Completion Date: April 26, 2024
    Type: To amend approval for an existing ICES Project
  8. PIA Title: The impact of early life exposure to green space and air pollution on developing a psychotic disorder in adolescence and early adulthood
    Completion Date: April 26, 2024
    Type: To amend approval for an existing ICES Project
  9. PIA Title: Trends in all-cause and cause-specific mortality among South Asian and Chinese people in Ontario: A population-based cohort study
    Completion Date: April 25, 2024
    Type: To request permission to conduct a new ICES Project
  10. PIA Title: Anthracycline and BC risk in HL survivors
    Completion Date: April 25, 2024
    Type: To amend approval for an existing ICES Project
  11. PIA Title: Cardiovascular-metabolic Disease in Asian Populations Relocated Abroad (CV-DIASPORA)
    Completion Date: April 25, 2024
    Type: To amend approval for an existing ICES Project
  12. PIA Title: Clinical translation of a genetic diagnosis for mental health in neurodevelopmental disorders: Linking health administrative and genomic data
    Completion Date: April 25, 2024
    Type: To amend approval for an existing ICES Project
  13. PIA Title: Virtual Innovation for Stroke Investigation and Treatment during COVID19 across Canada (VISIT-Canada)
    Completion Date: April 25, 2024
    Type: To amend approval for an existing ICES Project
  14. PIA Title: The Development of a Melanoma Survivorship Program in Ontario: An Integrated Knowledge Translation Study
    Completion Date: April 24, 2024
    Type: To amend approval for an existing ICES Project
  15. PIA Title: Effect of Pregnancy on Renal Function in Women with Chronic Kidney Disease
    Completion Date: April 24, 2024
    Type: To amend approval for an existing ICES Project
  16. PIA Title: Mental health service use and risk of suicide after dementia diagnosis: A population-based retrospective matched cohort study
    Completion Date: April 23, 2024
    Type: To amend approval for an existing ICES Project
  17. PIA Title: Direct medical costs, cost predictors, and end-of-life experiences of head and neck cancer patients
    Completion Date: April 23, 2024
    Type: To amend approval for an existing ICES Project
  18. PIA Title: Derivation and validation of a risk prediction tool for mortality after non-hepatic abdominal surgery in patients with cirrhosis
    Completion Date: April 22, 2024
    Type: To amend approval for an existing ICES Project
  19. PIA Title: The effectiveness of sodium-glucose cotransporter-2 (SGLT2) inhibitors in chronic heart failure with and without diabetes
    Completion Date: April 19, 2024
    Type: To request permission to conduct a new ICES Project
  20. PIA Title: The risk of dementia associated with the use of overactive bladder and diabetic medications in younger patients
    Completion Date: April 19, 2024
    Type: To amend approval for an existing ICES Project
  21. PIA Title: Prevalence and incidence of liver disease and access to liver transplant and living liver donation in ethno-racial communities – ACCESS-LT
    Completion Date: April 19, 2024
    Type: To amend approval for an existing ICES Project
  22. PIA Title: Development of prediction models gastrointestinal cancers
    Completion Date: April 18, 2024
    Type: To amend approval for an existing ICES Project
  23. PIA Title: Metabolite biomarkers of future diabetes in South Asian women diagnosed with gestational diabetes mellitus
    Completion Date: April 18, 2024
    Type: To amend approval for an existing ICES Project
  24. PIA Title: Maternal Attention Deficit Hyperactivity Disorder (mADHD): Mental Health, Pregnancy & Infant Outcomes
    Completion Date: April 17, 2024
    Type: To request permission to conduct a new ICES Project
  25. PIA Title: A Phase IV trial of a hospital policy of Tranexamic acid to reduce transfusion in major non-cardiac surgery (TRACTION)
    Completion Date: April 16, 2024
    Type: To amend approval for an existing ICES Project
  26. PIA Title: Optimal clinical and geographic placement of integrated community health services centres (ICHSCs)
    Completion Date: April 15, 2024
    Type: To request permission to conduct a new ICES Project
  27. PIA Title: Risk trajectories and comparative effectiveness of opioid agonist treatments after opioid overdoses
    Completion Date: April 12, 2024
    Type: To request permission to conduct a new ICES Project
  28. PIA Title: Healthcare Utilization and Developmental Outcomes Among Siblings of Children Born Preterm: A Multi-Provincial Population-based Study
    Completion Date: April 12, 2024
    Type: To amend approval for an existing ICES Project
  29. PIA Title: Impact of anesthesiologist versus non-anesthesiologist administered sedation for cataract surgery
    Completion Date: April 12, 2024
    Type: To amend approval for an existing ICES Project
  30. PIA Title: Exposure to low dose radiation and morbidity outcomes among Ontario workers of the Canadian National Dose Registry
    Completion Date: April 12, 2024
    Type: To amend approval for an existing ICES Project
  31. PIA Title: Association of the TAVR Wait Times’ Differences for Severe Aortic Stenosis Patients and Concomitant Depression and Outcomes
    Completion Date: April 11, 2024
    Type: To request permission to conduct a new ICES Project
  32. PIA Title: Investigating Socioeconomic Outcomes of Adolescent and Young Adult Cancer Survivors
    Completion Date: April 11, 2024
    Type: To request permission to conduct a new ICES Project
  33. PIA Title: Physical and mental illness among individuals with severe maternal morbidity
    Completion Date: April 10, 2024
    Type: To request permission to conduct a new ICES Project
  34. PIA Title: Impact of the COVID-19 pandemic on the emergency department physician workforce in Ontario
    Completion Date: April 10, 2024
    Type: To request permission to conduct a new ICES Project
  35. PIA Title: Trends in the use of raloxifene among older adults, 1999-2022 (NIHOP MSc)
    Completion Date: April 10, 2024
    Type: To amend approval for an existing ICES Project
  36. PIA Title: Measuring equity and generating action in cancer (MEGAN-CAN)
    Completion Date: April 10, 2024
    Type: To amend approval for an existing ICES Project
  37. PIA Title: School-based interventions to mitigate the tripledemic: Simulation-based evidence to guide high-impact public health and environmental measures
    Completion Date: April 9, 2024
    Type: To request permission to conduct a new ICES Project
  38. PIA Title: Towards Equity in Trauma Recovery: Evaluating the Impact of Primary Care Access on Long-Term Health Outcomes After Severe Traumatic Injury
    Completion Date: April 9, 2024
    Type: To amend approval for an existing ICES Project
  39. PIA Title: Primary care reform and inequalities in the utilization of healthcare services and health status
    Completion Date: April 9, 2024
    Type: To request permission to conduct a new ICES Project
  40. PIA Title: Evaluation of multi-jurisdictional analysis techniques within Ontario
    Completion Date: April 9, 2024
    Type: To request permission to conduct a new ICES Project
  41. PIA Title: Screening for Liver Fibrosis: The role of system-level barriers on access to health services
    Completion Date: April 9, 2024
    Type: To amend approval for an existing ICES Project
  42. PIA Title: Achieving Hepatitis C Elimination in Canada; Addressing the Needs of the Diverse Groups at Risk (Measuring Treatment Uptake and Impact)
    Completion Date: April 9, 2024
    Type: To amend approval for an existing ICES Project
  43. PIA Title: Impact of patient- and facility-language on older adults visiting the emergency department in Ontario
    Completion Date: April 8, 2024
    Type: To request permission to conduct a new ICES Project
  44. PIA Title: Long-term Mental Health Morbidity Among Survivors of COVID-19 Critical Illness – A Population-Based Cohort Study
    Completion Date: April 8, 2024
    Type: To amend approval for an existing ICES Project
  45. PIA Title: Pelvic and Thoracolumbar Fragility Fractures in the Elderly
    Completion Date: April 8, 2024
    Type: To amend approval for an existing ICES Project
  46. PIA Title: Impact of Infertility and its Treatment on Women’s Mental Health – CARTR+ Data Linkage
    Completion Date: April 8, 2024
    Type: To amend approval for an existing ICES Project
  47. PIA Title: Immune-related disorders in adolescence and future risk of endometriosis: A population-based cohort study
    Completion Date: April 5, 2024
    Type: To request permission to conduct a new ICES Project
  48. PIA Title: Review of Differences in Patients with Atrial Fibrillation Across Ontario
    Completion Date: April 4, 2024
    Type: To request permission to conduct a new ICES Project
  49. PIA Title: Health services use in major trauma survivors: a retrospective, population-based cohort study
    Completion Date: April 4, 2024
    Type: To amend approval for an existing ICES Project
  50. PIA Title: Using Linked Laboratory and Health Administrative Data to Study Respiratory Syncytial Virus (RSV)-Associated Hospitalizations and Mortality
    Completion Date: April 4, 2024
    Type: To amend approval for an existing ICES Project
  51. PIA Title: The prevalence of inborn errors of immunity in pediatric lymphoma
    Completion Date: April 3, 2024
    Type: To request permission to conduct a new ICES Project
  52. PIA Title: Examining Regional Variation in Post-Healthcare Outcomes for Sexual Assault Survivors
    Completion Date: April 3, 2024
    Type: To request permission to conduct a new ICES Project
  53. PIA Title: Forecasting Disease Burden of Aging Population in Ontario Using Machine Learning Approaches
    Completion Date: April 3, 2024
    Type: To request permission to conduct a new ICES Project
  54. PIA Title: Using big data to conduct innovative cardiovascular clinical trials
    Completion Date: April 3, 2024
    Type: To amend approval for an existing ICES Project
  55. PIA Title: Telemedicine and transfer for acute stroke care
    Completion Date: April 2, 2024
    Type: To request permission to conduct a new ICES Project
  56. PIA Title: Comparative effectiveness of opioid agonist treatments among youth
    Completion Date: April 2, 2024
    Type: To request permission to conduct a new ICES Project
  57. PIA Title: Effect of adequate prenatal care on emergency department use and adverse outcomes: A secondary data analysis of Ontario health databases
    Completion Date: April 2, 2024
    Type: To amend approval for an existing ICES Project
  58. PIA Title: Development of a Machine Learning Population Segmentation Model to Predict Kidney Health Outcomes in Ontario
    Completion Date: April 1, 2024
    Type: To request permission to conduct a new ICES Project
  1. PIA Title: COVID-19 outcomes among those vaccinated at an Indigenous-run vaccination clinic
    Completion Date: March 28, 2024
    Type: To request permission to conduct a new ICES Project
  2. PIA Title: Examining the transition from hospital to home in patients with the post-COVID-19 condition
    Completion Date: March 28, 2024
    Type: To amend approval for an existing ICES Project
  3. PIA Title: Severe Acute Respiratory Failure in adolescent and young adult Exposed to Trimethoprim-Sulfamethoxazole
    Completion Date: March 27, 2024
    Type: To request permission to conduct a new ICES Project
  4. PIA Title: The Impact of Opioid and Cannabis Exposure on Fetal Growth: A Retrospective Population-Based Cohort Study
    Completion Date: March 27, 2024
    Type: To request permission to conduct a new ICES Project
  5. PIA Title: Identifying pemphigus and pemphigoid using pathology
    Completion Date: March 26, 2024
    Type: To request permission to conduct a new ICES Project
  6. PIA Title: Examining the impact of pre-existing disability on patients with the post-COVID-19 condition
    Completion Date: March 26, 2024
    Type: To amend approval for an existing ICES Project
  7. PIA Title: Effect CKD, BNP, right heart cath and LVEF on 30-day and 1-year mortality and morbidity after mitral valve TEER in Ontario
    Completion Date: March 25, 2024
    Type: To amend approval for an existing ICES Project
  8. PIA Title: Evaluation of Toronto’s wastewater surveillance for SARS-CoV-2
    Completion Date: March 22, 2024
    Type: To request permission to conduct a new ICES Project
  9. PIA Title: Regional Analyses of Sexual Assault Survivors Reporting to Ontario Hospitals
    Completion Date: March 22, 2024
    Type: To request permission to conduct a new ICES Project
  10. PIA Title: Homeless counts: the changing portrait of homelessness in Ontario
    Completion Date: March 21, 2024
    Type: To request permission to conduct a new ICES Project
  11. PIA Title: ICU admission patterns and procedures among asthma individuals in Ontario
    Completion Date: March 21, 2024
    Type: To request permission to conduct a new ICES Project
  12. PIA Title: Patterns of asthma mortality among asthma individuals in Ontario
    Completion Date: March 21, 2024
    Type: To request permission to conduct a new ICES Project
  13. PIA Title: Health in 2044 in Ontario
    Completion Date: March 21, 2024
    Type: To amend approval for an existing ICES Project
  14. PIA Title: Assessing Nurse Practitioner Contribution to Primary Care within three practice models in Ontario
    Completion Date: March 21, 2024
    Type: To amend approval for an existing ICES Project
  15. PIA Title: CIRN PCN COVID-19 Vaccine Safety and Effectiveness
    Completion Date: March 21, 2024
    Type: To amend approval for an existing ICES Project
  16. PIA Title: The impact of the COVID-19 pandemic on healthcare engagement among People Living with HIV in Ontario
    Completion Date: March 20, 2024
    Type: To request permission to conduct a new ICES Project
  17. PIA Title: Kidney Health and Care among GCT#3 First Nations Communities
    Completion Date: March 20, 2024
    Type: To amend approval for an existing ICES Project
  18. PIA Title: Development of prediction models for patient centered outcomes in GI cancer patients
    Completion Date: March 19, 2024
    Type: To request permission to conduct a new ICES Project
  19. PIA Title: Evaluating the Impact of Wellness Hub on SARS-CoV-2 Outcomes in Long-Term Care Homes in Ontario
    Completion Date: March 19, 2024
    Type: To request permission to conduct a new ICES Project
  20. PIA Title: Generational influences on mental health conditions, substance use, and healthcare encounters
    Completion Date: March 19, 2024
    Type: To request permission to conduct a new ICES Project
  21. PIA Title: Patterns of care of gestational trophoblastic neoplasia in Ontario: A population-based study
    Completion Date: March 18, 2024
    Type: To request permission to conduct a new ICES Project
  22. PIA Title: Downward income mobility between pregnancies and risk of adverse maternal and infant outcomes
    Completion Date: March 18, 2024
    Type: To amend approval for an existing ICES Project
  23. PIA Title: A Real-World Evidence (RWE) study of Adjuvant Bisphosphonate Therapy for Early-Stage Breast Cancer in Ontario, Canada
    Completion Date: March 18, 2024
    Type: To request permission to conduct a new ICES Project
  24. PIA Title: Medically attended influenza illness during pregnancy and the risk of stillbirth and preterm birth
    Completion Date: March 18, 2024
    Type: To request permission to conduct a new ICES Project
  25. PIA Title: Long Term Cardiovascular Outcomes in Children and Adolescents Diagnosed with Hypertension in Ontario: A Propensity-Matched Cohort study
    Completion Date: March 18, 2024
    Type: To amend approval for an existing ICES Project
  26. PIA Title: The Effect of Anemia in Pregnancy on Maternal, Fetal and Neonatal Outcomes: A retrospective, cohort study using administrative data in Ontario
    Completion Date: March 18, 2024
    Type: To amend approval for an existing ICES Project
  27. PIA Title: Symptom Burden of Patients with Cancer Experiencing Venous and Arterial Thrombosis
    Completion Date: March 14, 2024
    Type: To request permission to conduct a new ICES Project
  28. PIA Title: Impact of antibiotic exposure in patients with hematologic malignancies on survival: A population-based analysis
    Completion Date: March 14, 2024
    Type: To request permission to conduct a new ICES Project
  29. PIA Title: Air pollution mixture and long-term outcomes after COVID-19
    Completion Date: March 14, 2024
    Type: To request permission to conduct a new ICES Project
  30. PIA Title: Associations between socioeconomic status, insulin pump uptake, and diabetes hospitalizations among young adults with type 1 diabetes
    Completion Date: March 14, 2024
    Type: To amend approval for an existing ICES Project
  31. PIA Title: Integrating equity into quality metrics for colorectal cancer: an analysis of wait times for curative-intent surgery
    Completion Date: March 14, 2024
    Type: To amend approval for an existing ICES Project
  32. PIA Title: High-cost users of Ontario healthcare – Machine Learning analysis
    Completion Date: March 14, 2024
    Type: To amend approval for an existing ICES Project
  33. PIA Title: High-cost users of Ontario healthcare
    Completion Date: March 14, 2024
    Type: To amend approval for an existing ICES Project
  34. PIA Title: Using ICES data to support Ontario Immunization Advisory Committee/Immunization & Vaccine Preventable Diseases operations at Public Health Ontario
    Completion Date: March 13, 2024
    Type: To request permission to conduct a new ICES Project
  35. PIA Title: Impact of distance from transplant centre on clinical outcomes in liver transplantation
    Completion Date: March 13, 2024
    Type: To amend approval for an existing ICES Project
  36. PIA Title: Dysbiotic events and the risk of neovascular age-related macular degeneration
    Completion Date: March 12, 2024
    Type: To request permission to conduct a new ICES Project
  37. PIA Title: A Phase IV trial of a hospital policy of Tranexamic acid to reduce transfusion in major non-cardiac surgery (TRACTION)
    Completion Date: March 12, 2024
    Type: To request permission to conduct a new ICES Project
  38. PIA Title: Association between high-intensity antibiotic prescribing and prescribing of psychotropic medications in children and older adults
    Completion Date: March 12, 2024
    Type: To amend approval for an existing ICES Project
  39. PIA Title: The association between fine particulate matter and the risk of childhood cancer
    Completion Date: March 12, 2024
    Type: To amend approval for an existing ICES Project
  40. PIA Title: Connection to Perinatal Care for the Management of Maternal Diabetes and Crohn’s & Colitis
    Completion Date: March 12, 2024
    Type: To amend approval for an existing ICES Project
  41. PIA Title: Health Economics Analysis of Home Visits for Patients at End of Life
    Completion Date: March 12, 2024
    Type: To amend approval for an existing ICES Project
  42. PIA Title: Provision of palliative care for patients receiving renal replacement therapy
    Completion Date: March 12, 2024
    Type: To amend approval for an existing ICES Project
  43. PIA Title: Understanding the Heightened Amputation Risk Among People Experiencing Homelessness: A Population-based Cohort Study
    Completion Date: March 8, 2024
    Type: To request permission to conduct a new ICES Project
  44. PIA Title: Upper gastrointestinal bleeds in northwestern Ontario: An epidemiological review of etiologies, interventions, and outcomes
    Completion Date: March 8, 2024
    Type: To request permission to conduct a new ICES Project
  45. PIA Title: Second cancer risk in patients with CLL treated with chemo-immunotherapy compared to targeted therapy
    Completion Date: March 8, 2024
    Type: To amend approval for an existing ICES Project
  46. PIA Title: Supporting aging in place with dementia: A population-based analysis of health care use, health outcomes and future burden
    Completion Date: March 7, 2024
    Type: To request permission to conduct a new ICES Project
  47. PIA Title: Vascular comANaGement in peripherAl aRterial Disease (VANGuARD)
    Completion Date: March 7, 2024
    Type: To request permission to conduct a new ICES Project
  48. PIA Title: Burden of Poor Nutrition On Healthcare Costs
    Completion Date: March 7, 2024
    Type: To request permission to conduct a new ICES Project
  49. PIA Title: Physician Compensation (Update 2023)
    Completion Date: March 7, 2024
    Type: To request permission to conduct a new ICES Project
  50. PIA Title: The Development of a Melanoma Survivorship Program in Ontario: An Integrated Knowledge Translation Study
    Completion Date: March 7, 2024
    Type: To amend approval for an existing ICES Project
  51. PIA Title: Interprofessional Team-Based Practice and Access to Mental Health Services and Psychiatric Hospitalizations: Evidence from Family Health Teams
    Completion Date: March 6, 2024
    Type: To amend approval for an existing ICES Project
  52. PIA Title: The risk of dementia associated with the use of overactive bladder and diabetic medications in younger patients
    Completion Date: March 6, 2024
    Type: To amend approval for an existing ICES Project
  53. PIA Title: Validation of administrative case definitions to identify hypertension among children in Ontario
    Completion Date: March 5, 2024
    Type: To request permission to conduct a new ICES Project
  54. PIA Title: Investigating self-harm behaviours in trans and non-binary individuals, and the impact of public policies
    Completion Date: March 5, 2024
    Type: To request permission to conduct a new ICES Project
  55. PIA Title: Pregnancy and Postpartum Urine Drug Testing in Ontario (PeriUDT): A Population-Based Cohort Study
    Completion Date: March 5, 2024
    Type: To amend approval for an existing ICES Project
  56. PIA Title: Building capacity in studying the health and wellbeing of Veterans and their families using provincial, routinely collected health and social data
    Completion Date: March 5, 2024
    Type: To amend approval for an existing ICES Project
  57. PIA Title: Pandemic Related Events & Alcohol Complicated Hospitalizations (PREACH)
    Completion Date: March 5, 2024
    Type: To amend approval for an existing ICES Project
  58. PIA Title: University Health Network Kidney Transplant Waitlist Calculator Validation
    Completion Date: March 4, 2024
    Type: To request permission to conduct a new ICES Project
  59. PIA Title: Differential impact of VOCs on COVID-19 severity and health inequities: a population-based genomic epidemiological investigation in ON and BC
    Completion Date: March 4, 2024
    Type: To amend approval for an existing ICES Project
  60. PIA Title: Effectiveness of MedsCheck Diabetes in Ontario: A Target Trial Emulation using Administrative Data
    Completion Date: March 1, 2024
    Type: To amend approval for an existing ICES Project
  1. ICES Data Holding: GEMINI
    Completion Date: February 27, 2024
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications of a proposed amendment to the ICES data holding GEMINI, consisting of a change to the variables to be collected.
  2. ICES Data Holding: ODB
    Completion Date: February 29, 2024
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with a proposed amendment to the ICES data holding ODB, consisting of collection of an additional variable from the Ministry of Health.
  3. PIA Title: Evaluation of OSP efficacy and uptake amongst patients with kidney disease
    Completion Date: February 29, 2024
    Type: To request permission to conduct a new ICES Project
  4. PIA Title: Using big data to conduct innovative cardiovascular clinical trials
    Completion Date: February 28, 2024
    Type: To amend approval for an existing ICES Project
  5. PIA Title: A comparative analysis of regional variation in PD prevalence and incidence: Ontario and Finland
    Completion Date: February 27, 2024
    Type: To request permission to conduct a new ICES Project
  6. PIA Title: An Appraisal of Grassroots Patient Medical Home Practice Developments in Canada: A College of Family Physicians of Canada Commissioned Study
    Completion Date: February 27, 2024
    Type: To amend approval for an existing ICES Project
  7. PIA Title: A Phase IV trial of a hospital policy of Tranexamic acid to reduce transfusion in major non-cardiac surgery (TRACTION)
    Completion Date: February 27, 2024
    Type: To request permission to conduct a new ICES Project
  8. PIA Title: Outcomes of Antiretroviral Drug Resistance Testing in Ontario
    Completion Date: February 27, 2024
    Type: To amend approval for an existing ICES Project
  9. PIA Title: Outcomes associated with incident concurrent nabilone use among chronic opioid users
    Completion Date: February 26, 2024
    Type: To request permission to conduct a new ICES Project
  10. PIA Title: Analysis of extreme temperatures on human health in Ontario to develop updated heat alert thresholds
    Completion Date: February 26, 2024
    Type: To request permission to conduct a new ICES Project
  11. PIA Title: Defining the Role of Dual Antiplatelet Therapy after Coronary Artery Bypass Surgery
    Completion Date: February 26, 2024
    Type: To request permission to conduct a new ICES Project
  12. PIA Title: End-of-Life Care Disposition for Head and Neck Cancer Patients with Surgical Airways
    Completion Date: February 26, 2024
    Type: To amend approval for an existing ICES Project
  13. PIA Title: Impact of COVID-19 on surgery in Ontario
    Completion Date: February 24, 2024
    Type: To amend approval for an existing ICES Project
  14. PIA Title: Impact of treatment delays in head & neck cancers
    Completion Date: February 23, 2024
    Type: To request permission to conduct a new ICES Project
  15. PIA Title: COVID-19 Impacts on Breast Cancer Screening and Care in the Caribbean and Marginalized Communities in Ontario
    Completion Date: February 22, 2024
    Type: To amend approval for an existing ICES Project
  16. PIA Title: Osteoporosis Pharmacotherapy and Outcomes
    Completion Date: February 22, 2024
    Type: To amend approval for an existing ICES Project
  17. PIA Title: Distribution of COVID-19 testing, infection and healthcare utilization amongst social housing residents in Ontario during the pandemic
    Completion Date: February 22, 2024
    Type: To amend approval for an existing ICES Project
  18. PIA Title: Healthcare Utilization and Developmental Outcomes Among Siblings of Children Born Preterm: A Multi-Provinical Population-based Study
    Completion Date: February 21, 2024
    Type: To request permission to conduct a new ICES Project
  19. PIA Title: Variability across Ontario’s Regional Renal Programs in the rate of steps completed toward receiving a kidney transplant
    Completion Date: February 21, 2024
    Type: To amend approval for an existing ICES Project
  20. PIA Title: Renal outcomes and pathways of care for patients with preserved renal function and heavy proteinuria in Ontario
    Completion Date: February 21, 2024
    Type: To request permission to conduct a new ICES Project
  21. PIA Title: How do perceptions of Covid-19 risk influence health decisions in pregnancy? A mixed methods study
    Completion Date: February 21, 2024
    Type: To amend approval for an existing ICES Project
  22. PIA Title: The impact of frailty on perioperative and oncologic outcomes in patients with gynecologic cancers
    Completion Date: February 20, 2024
    Type: To amend approval for an existing ICES Project
  23. PIA Title: Classifying And Describing Retirement Home Residents In Ontario: Creating The First Population-Level Retirement Home Cohort
    Completion Date: February 20, 2024
    Type: To amend approval for an existing ICES Project
  24. PIA Title: Reimagining Naturally Occurring Retirement Communities (NORCs) for 21st Century Cities – Impact Assessment
    Completion Date: February 16, 2024
    Type: To request permission to conduct a new ICES Project
  25. PIA Title: Measuring the impact of the substitution of innovator biologics with biosimilars on uptake and costs among Ontario Drug Benefit recipients
    Completion Date: February 16, 2024
    Type: To request permission to conduct a new ICES Project
  26. PIA Title: Impacts of air pollution and meteorological factors on COVID-19 dynamic transmission
    Completion Date: February 15, 2024
    Type: To amend approval for an existing ICES Project
  27. PIA Title: Evaluation for the Orléans Health Hub
    Completion Date: February 14, 2024
    Type: To amend approval for an existing ICES Project
  28. PIA Title: Evaluating the impact of direct-acting antiviral treatment access policy on chronic hepatitis C prevalence and the undiagnosed proportion
    Completion Date: February 13, 2024
    Type: To request permission to conduct a new ICES Project
  29. PIA Title: Breast Cancer Brain Metastasis: Improving Clinical Understanding and Analysis by Applying Artificial Intelligence (AI)-based tools – AI-BCBM
    Completion Date: February 13, 2024
    Type: To request permission to conduct a new ICES Project
  30. PIA Title: Continuity of care at the end of life and health care outcomes among patients with advanced heart failure: a population-based cohort study
    Completion Date: February 13, 2024
    Type: To amend approval for an existing ICES Project
  31. PIA Title: Continuity of care at the end of life and health care outcomes among patients with COPD: a population-based cohort study
    Completion Date: February 13, 2024
    Type: To amend approval for an existing ICES Project
  32. PIA Title: Continuity of care at the end of life and health care outcomes among patients with end-stage kidney disease: a population-based cohort study
    Completion Date: February 13, 2024
    Type: To amend approval for an existing ICES Project
  33. PIA Title: Improving the care of older adults living with dementia across Canada during the COVID-19 pandemic
    Completion Date: February 13, 2024
    Type: To amend approval for an existing ICES Project
  34. PIA Title: Outcomes of endoscopic resection of large colonic polyps in patients with inflammatory bowel disease
    Completion Date: February 12, 2024
    Type: To request permission to conduct a new ICES Project
  35. PIA Title: Identification of fluoropyrimidine-related adverse events in colorectal cancer patients in Ontario: ICD-10 code validation and estimation of costs
    Completion Date: February 12, 2024
    Type: To amend approval for an existing ICES Project
  36. PIA Title: COVID-19 in Patients with Solid Tumor and Hematologic Malignant Diseases in Ontario
    Completion Date: February 12, 2024
    Type: To amend approval for an existing ICES Project
  37. PIA Title: Health in 2044 in Ontario
    Completion Date: February 8, 2024
    Type: To request permission to conduct a new ICES Project
  38. PIA Title: Getting older and wiser: the complexities of ageing with cystic fibrosis
    Completion Date: February 7, 2024
    Type: To request permission to conduct a new ICES Project
  39. PIA Title: Examining hospital and medication-related harm and the associated impact among those with hip fracture in Ontario, Canada
    Completion Date: February 7, 2024
    Type: To request permission to conduct a new ICES Project
  40. PIA Title: Antibiotic audit and feedback reports for Ontario physicians
    Completion Date: February 7, 2024
    Type: To amend approval for an existing ICES Project
  41. PIA Title: Healthcare utilization in individuals with secondary fracture after spinal cord injury
    Completion Date: February 6, 2024
    Type: To request permission to conduct a new ICES Project
  42. PIA Title: Prevalence, characteristics, and severity of psychosis patients across Ontario Health regions
    Completion Date: February 6, 2024
    Type: To request permission to conduct a new ICES Project
  43. PIA Title: Evaluating monkeypox vaccine effectiveness and safety
    Completion Date: February 6, 2024
    Type: To amend approval for an existing ICES Project
  44. PIA Title: When does MS begin after infectious mononucleosis?
    Completion Date: February 5, 2024
    Type: To amend approval for an existing ICES Project
  45. PIA Title: The impact of marginalization on timely access to pediatric surgery
    Completion Date: February 5, 2024
    Type: To request permission to conduct a new ICES Project
  46. PIA Title: Immunosuppression and Post-transplant Neurodegenerative Diseases in Solid Organ Transplant Recipients
    Completion Date: February 5, 2024
    Type: To request permission to conduct a new ICES Project
  47. PIA Title: Understanding the relationship between the distance between patients and primary care providers and quality of care
    Completion Date: February 5, 2024
    Type: To request permission to conduct a new ICES Project
  48. PIA Title: Impact of physician sex and patient gender on outcomes in Obstetrics & Gynecology
    Completion Date: February 2, 2024
    Type: To request permission to conduct a new ICES Project
  49. PIA Title: Predictors and outcomes of heart failure (HF) diagnosed in the community when compared to diagnosis made in acute care settings
    Completion Date: February 1, 2024
    Type: To amend approval for an existing ICES Project
  50. PIA Title: Drug interactions between fentanyl, hydromorphone and oxycodone with CYP3A4 inhibiting macrolides
    Completion Date: February 1, 2024
    Type: To amend approval for an existing ICES Project
  51. PIA Title: Distribution of COVID-19 testing, infection and healthcare utilization amongst social housing residents in Ontario during the pandemic
    Completion Date: February 1, 2024
    Type: To amend approval for an existing ICES Project
  1. PIA Title: Examining the role of home care payment source on health service outcomes
    Completion Date: January 30, 2024
    Type: To request permission to conduct a new ICES Project
  2. PIA Title: Paxlovid Impact Analysis in the Context of Age-Based Policy Variations in Canada and the United States
    Completion Date: January 29, 2024
    Type: To amend approval for an existing ICES Project
  3. PIA Title: Novel clinical, molecular, and -omics approaches to prediction of heart failure (HF) readmission (short name: Innovation Grant Study)
    Completion Date: January 29, 2024
    Type: To amend approval for an existing ICES Project
  4. PIA Title: Structured process Informed by Data, Evidence and Research (SPIDER): improving care for elderly persons living with polypharmacy
    Completion Date: January 26, 2024
    Type: To request permission to conduct a new ICES Project
  5. PIA Title: Impact of anesthesiologist versus non-anesthesiologist administered sedation for cataract surgery
    Completion Date: January 26, 2024
    Type: To amend approval for an existing ICES Project
  6. PIA Title: Understanding Hepatitis C Virus in the First Nations Population in Ontario: Estimating the Health and Economic Burden
    Completion Date: January 26, 2024
    Type: To amend approval for an existing ICES Project
  7. PIA Title: Impact of immunization programs on HPV-related outcomes
    Completion Date: January 25, 2024
    Type: To request permission to conduct a new ICES Project
  8. PIA Title: Comparing outcomes of ureteric stent versus nephrostomy tube in patients with urosepsis: a population-based study in Ontario, Canada
    Completion Date: January 25, 2024
    Type: To amend approval for an existing ICES Project
  9. PIA Title: Forensic Hospitalization Following Diagnosis of Psychotic Disorder: A Retrospective Cohort Study Using Health Administrative Data
    Completion Date: January 25, 2024
    Type: To amend approval for an existing ICES Project
  10. PIA Title: RAASi Prescribing Patterns and SGLT-2 Inhibitor Use in Chronic Kidney Disease
    Completion Date: January 25, 2024
    Type: To request permission to conduct a new ICES Project
  11. PIA Title: Incidence of Psychotic Disorders Among Children With Adverse Childhood Experiences
    Completion Date: January 25, 2024
    Type: To amend approval for an existing ICES Project
  12. PIA Title: Unlocking our data: Creation of a Robust Dataset for the Real-World Clinical and Economic Evaluation of Lymphoma Management
    Completion Date: January 25, 2024
    Type: To amend approval for an existing ICES Project
  13. PIA Title: Early, late, and non-users of a voluntary provincial audit and feedback intervention in primary care
    Completion Date: January 25, 2024
    Type: To amend approval for an existing ICES Project
  14. PIA Title: Patient Centered Outcomes in Childhood Onset Nephrotic Syndrome
    Completion Date: January 24, 2024
    Type: To request permission to conduct a new ICES Project
  15. PIA Title: Towards Equity in Burn Recovery: Evaluating the Impact of Primary Care Access on Long­Term Health Outcomes After Severe Burn Injury
    Completion Date: January 24, 2024
    Type: To request permission to conduct a new ICES Project
  16. PIA Title: Health care resource utilization of long-term care residents
    Completion Date: January 24, 2024
    Type: To amend approval for an existing ICES Project
  17. PIA Title: Risk equations for a computer microsimulation model for type 2 diabetes
    Completion Date: January 24, 2024
    Type: To amend approval for an existing ICES Project
  18. PIA Title: A population-based study of the effect of iron deficiency, independent of anemia, on adverse perinatal outcomes
    Completion Date: January 23, 2024
    Type: To request permission to conduct a new ICES Project
  19. PIA Title: Bleeding and New Cancer Diagnosis in Atrial Fibrillation Patients treated with anticoagulants
    Completion Date: January 23, 2024
    Type: To amend approval for an existing ICES Project
  20. PIA Title: Impact of the Knowledge Translation Intervention on Health Care Outcomes: A Cluster Randomized Control Trial
    Completion Date: January 23, 2024
    Type: To amend approval for an existing ICES Project
  21. PIA Title: The association between childhood food insecurity and chronic health conditions: a population-based cohort study
    Completion Date: January 23, 2024
    Type: To amend approval for an existing ICES Project
  22. PIA Title: Anterior total hip arthroplasty
    Completion Date: January 22, 2024
    Type: To request permission to conduct a new ICES Project
  23. PIA Title: Cognitive performance and hypnotic prescriptions among long-term care (LTC) residents in Ontario, Canada
    Completion Date: January 22, 2024
    Type: To amend approval for an existing ICES Project
  24. PIA Title: Risk equations for a computer microsimulation model for type 2 diabetes
    Completion Date: January 22, 2024
    Type: To request permission to conduct a new ICES Project
  25. PIA Title: Domperidone Use in Lactation and Risk of Postpartum Psychiatric Disorders
    Completion Date: January 22, 2024
    Type: To amend approval for an existing ICES Project
  26. PIA Title: Exposure to low dose radiation and morbidity outcomes among Ontario workers of the Canadian National Dose Registry
    Completion Date: January 22, 2024
    Type: To amend approval for an existing ICES Project
  27. PIA Title: End-of-Life Care Disposition for Head and Neck Cancer Patients with Surgical Airways
    Completion Date: January 19, 2024
    Type: To amend approval for an existing ICES Project
  28. PIA Title: Antibiotic use Spillover effects on the acquisition of antibiotic resistance organisms in Ontario Long-Term Care residents
    Completion Date: January 19, 2024
    Type: To amend approval for an existing ICES Project
  29. PIA Title: Estimating Chronic Hepatitis B Prevalence and Undiagnosed Proportion
    Completion Date: January 19, 2024
    Type: To amend approval for an existing ICES Project
  30. PIA Title: The CUP Study: Connecting Unattached Patients to primary health care providers
    Completion Date: January 19, 2024
    Type: To amend approval for an existing ICES Project
  31. PIA Title: The Impact of Care Patterns and Infectious Prophylaxis on Outcomes for Patients with Newly Diagnosed Indolent Non-Hodgkin Lymphoma in Ontario
    Completion Date: January 18, 2024
    Type: To request permission to conduct a new ICES Project
  32. PIA Title: Anthracycline exposure and breast cancer risk in female Hodgkin lymphoma survivors
    Completion Date: January 18, 2024
    Type: To request permission to conduct a new ICES Project
  33. PIA Title: Development of prediction models gastrointestinal cancers
    Completion Date: January 18, 2024
    Type: To request permission to conduct a new ICES Project
  34. PIA Title: Assessing Impact of Virtual Care Use During the COVID 19 Pandemic on Mental Health in Ontario using Health System Output Indicators
    Completion Date: January 18, 2024
    Type: To request permission to conduct a new ICES Project
  35. PIA Title: Navigating Covid-19 Risk in Pregnancy
    Completion Date: January 18, 2024
    Type: To amend approval for an existing ICES Project
  36. PIA Title: Race and ethnic disparities in acute myocardial infarction
    Completion Date: January 17, 2024
    Type: To request permission to conduct a new ICES Project
  37. PIA Title: UNEARTH CVD (Module 2): Understanding the impact of Heart-Brain multimorbidity
    Completion Date: January 17, 2024
    Type: To request permission to conduct a new ICES Project
  38. PIA Title: Maternal disability and long-term outpatient mental health care use and severe psychiatric outcomes: A population-based cohort study
    Completion Date: January 17, 2024
    Type: To request permission to conduct a new ICES Project
  39. PIA Title: Building capacity in studying the health and wellbeing of Veterans and their families using provincial, routinely collected health and social data
    Completion Date: January 17, 2024
    Type: To request permission to conduct a new ICES Project
  40. PIA Title: Towards Equity in Trauma Recovery: Evaluating the Impact of Primary Care Access on Long-Term Health Outcomes After Severe Traumatic Injury
    Completion Date: January 16, 2024
    Type: To amend approval for an existing ICES Project
  41. PIA Title: Determining linguistic association with readmission in heart failure patients
    Completion Date: January 16, 2024
    Type: To amend approval for an existing ICES Project
  42. PIA Title: The risk of stroke-related epilepsy associated with post-stroke statin use among older adult men and women
    Completion Date: January 15, 2024
    Type: To amend approval for an existing ICES Project
  43. PIA Title: Towards Equity in Trauma Recovery: Evaluating the Impact of Primary Care Access on Long-Term Health Outcomes After Severe Traumatic Injury
    Completion Date: January 11, 2024
    Type: To request permission to conduct a new ICES Project
  44. PIA Title: The Impact of Baseline Kidney Function and Dialysis Status on ICU Severity Scores
    Completion Date: January 11, 2024
    Type: To request permission to conduct a new ICES Project
  45. PIA Title: Mental health service use and risk of suicide after dementia diagnosis: A population-based retrospective matched cohort study
    Completion Date: January 11, 2024
    Type: To amend approval for an existing ICES Project
  46. PIA Title: Assessing Nurse Practitioner Contribution to Primary Care within three practice models in Ontario
    Completion Date: January 10, 2024
    Type: To amend approval for an existing ICES Project
  47. PIA Title: Cardiovascular-metabolic Disease in Asian Populations Relocated Abroad (CV-DIASPORA)
    Completion Date: January 9, 2024
    Type: To request permission to conduct a new ICES Project
  48. PIA Title: Long-term outcomes after endovascular thrombectomy
    Completion Date: January 8, 2024
    Type: To request permission to conduct a new ICES Project
  49. PIA Title: Assessing of current quality of management of anemia and nutrition in gastric cancer patients: A population-based analysis in Ontario
    Completion Date: January 8, 2024
    Type: To request permission to conduct a new ICES Project
  50. PIA Title: Rate of dementia and care needs in older adults with traumatic brain injury and intersections with social determinants of health
    Completion Date: January 8, 2024
    Type: To request permission to conduct a new ICES Project
  51. PIA Title: Chronic kidney disease and delays in diagnostic imaging using contrast
    Completion Date: January 4, 2024
    Type: To amend approval for an existing ICES Project
  52. PIA Title: Musculoskeletal manifestations of Inflammatory Bowel Disease: A population-based cohort study
    Completion Date: January 3, 2024
    Type: To amend approval for an existing ICES Project
  53. PIA Title: Diabetes medication use and prevalence of deprescribing among newly admitted LTC residents with diabetes in Ontario
    Completion Date: January 2, 2024
    Type: To request permission to conduct a new ICES Project
  54. PIA Title: Forensic Hospitalization Following Diagnosis of Psychotic Disorder: A Retrospective Cohort Study Using Health Administrative Data
    Completion Date: January 2, 2024
    Type: To amend approval for an existing ICES Project
  1. ICES Data Holding: DDARD
    Completion Date: December 21, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with a proposed amendment to the ICES data holding titled DDARD, which involves expanding the scope of its use to include linkage with all ICES data and use by third party researchers.
  2. ICES Data Holding: Indigenous data holding
    Completion Date: December 22, 2023
    Summary: The purpose of this Privacy Impact Assessment was to assess a request for ICES to collect data from an Indigenous partner.
  1. ICES Data Holding: Note: CLD (Clinical Liver Database) is currently retained by ICES as a Controlled Use Data Holding (CUD), collected by ICES from Toronto Western Hospital/UHN, subject to the DSA#2677, for use in ICES Projects
    Completion Date: November 14, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with a proposed amendment to the ICES data holding titled CLD, which involves changing the obligations associated with its use, specifically, changing the person who approves each of ICES’ uses of CLD and the acknowledgments and credits required in each publication that uses CLD.
  2. ICES Data Holding: Drug and Drug/Alcohol Related Deaths data (“DDARD”) collected from OCC that is linked with ICES Data Holdings (collectively the “ICES Data”) to OCC
    Completion Date: November 17, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with a requested disclosure of ICES data to the Office of the Chief Coroner.
  1. ICES Data Holding: OSR
    Completion Date: September 14, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with a proposed amendment to the ICES data holding titled OSR, which involves changing the number of Ontario hospitals from which additional personal health information (“PHI”) pertaining to stroke patients seen between April 1, 2022, to March 31, 2023, will be collected, and adding an additional variable to a case list that was generated by ICES from its PHI holdings and that will be sent to one of the hospitals.
  1. ICES Data Holding: MOH
    Completion Date: August 31, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ collection, use and/or disclosure of ICES data holdings from the Ministry of Health, specifically, ADP, CAPE, CCRS, CPDB, DAD, HCDMOH, HCES, INST, LOC, NACRS, NRS, ODB, OHCAS, OHIP, OMHRS, OTR, PCAS, RAIHCMOH, RPDB, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004 is permitted to do.
  2. ICES Data Holding: CIHI
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ collection, use and/or disclosure of ICES data holdings from the Canadian Institute for Health Information, specifically, CCRS, DAD, NACRS, OMHRS, and CORR, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004 is permitted to do.
  3. ICES Data Holding: HYPER
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, HYPER, derived from existing ICES data holdings sourced from the Ministry of Health and the Canadian Institute for Health Information, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004 is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving hypertension.
  4. ICES Data Holding: HIV
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, HIV, derived from existing ICES data holdings sourced from the Ministry of Health and the Canadian Institute for Health Information, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving HIV.
  5. ICES Data Holding: SDS
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, SDS, derived from existing ICES data holdings sourced from the Ministry of Health and the Canadian Institute for Health Information, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving ambulatory surgical care.
  6. ICES Data Holding: ASTHMA
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, ASTHMA, derived from existing ICES data holdings sourced from the Ministry of Health and the Canadian Institute for Health Information, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving asthma.
  7. ICES Data Holding: MOMBABY
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, MOMBABY, derived from existing ICES data holdings sourced from the Ministry of Health and the Canadian Institute for Health Information, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving perinatal care.
  8. ICES Data Holding: OCCC
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, OCCC, derived from existing ICES data holdings sourced from the Ministry of Health and the Canadian Institute for Health Information, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving Crohn’s disease or Ulcerative Colitis.
  9. ICES Data Holding: OMID
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, OMID, derived from existing ICES data holdings sourced from the Ministry of Health, the Canadian Institute for Health Information, and Statistics Canada, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving acute myocardial infarction.
  10. ICES Data Holding: CHF
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, CHF, derived from existing ICES data holdings sourced from the Ministry of Health and the Canadian Institute for Health Information, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving congestive heart failure.
  11. ICES Data Holding: COPD
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, COPD, derived from existing ICES data holdings sourced from the Ministry of Health and the Canadian Institute for Health Information, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving chronic obstructive pulmonary disease.
  12. ICES Data Holding: ORAD
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, ORAD, derived from existing ICES data holdings sourced from the Ministry of Health and the Canadian Institute for Health Information, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving rheumatoid arthritis.
  13. ICES Data Holding: PHYSNET
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, PHYSNET, derived from existing ICES data holdings sourced from the Ministry of Health and the Canadian Institute for Health Information, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving linking patients and/or physicians to physician networks in Ontario.
  14. ICES Data Holding: PIBD
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, PIBD, derived from existing ICES data holdings sourced from the Ministry of Health and the Canadian Institute for Health Information, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving children in Ontario with inflammatory bowel disease.
  15. ICES Data Holding: CONTACT
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, CONTACT, derived from existing ICES data holdings sourced from the Ministry of Health and the Canadian Institute for Health Information, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving health services research.
  16. ICES Data Holding: STATSCAN
    Completion Date: August 30, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holdings, CCHS, NPHS, and OHSurvey, derived from personal information sourced from Statistics Canada, to be used for evaluation, planning and monitoring of the health system, as well as research, in the areas of evaluating population health status, healthcare service usage, and lifestyle risk factors.
  17. ICES Data Holding: ERCLAIM
    Completion Date: August 29, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with ICES’ creation, use, and/or disclosure of the ICES data holding, ERCLAIM, derived from existing ICES data holdings sourced from the Ministry of Health, for purposes consistent with what a prescribed entity under section 45 of the Personal Health Information Protection Act, 2004, is permitted to do, including evaluation, planning and monitoring of the health system, as well as research, involving emergency room claims.
  1. ICES Data Holding: REDCap
    Completion Date: July 23, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications of the various steps and requirements for primary data collection performed by ICES, using REDCap.
  2. ICES Data Holding: IMPACT Amendment
    Completion Date: July 21, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with a proposed amendment to the controlled use data holding (“CUD”) titled IMPACT (the “IMPACT CUD”), the purpose of which is to extend the time frame for the subset of the IMPACT CUD referred to in PIA-304 as IMPACT CNS data to December 31, 2019, from December 31, 2017.
  3. ICES Data Holding: SMART-EVT Amendment
    Completion Date: July 21, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with a proposed amendment to the ICES data holding titled OSR, which involves collection of an additional year of personal health information (“PHI”) from various hospitals pertaining to stroke patients seen between April 1, 2022, to March 31, 2023. To facilitate such collection, ICES will use its PHI holdings to generate case lists of individuals to disclose to each Ontario hospital from which ICES will be collecting PHI about stroke patients.
  4. ICES Data Holding: interRAI HC and interRAI CA) originally collected from Ontario Health (OH)
    Completion Date: July 29, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with a proposed amendment to the ICES data holdings titled interRAI HC and interRAI CA, the purpose of which is to collect from Ontario Health (OH) additional variables.
  5. ICES Data Holding: Canadian Deprivation Index (CDI)
    Completion Date: July 28, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy implications associated with making the following revisions pertaining to creation by ICES of a new data holding which is sourced from publicly available data that is not personal information.
  1. ICES Data Holding: Indigenous data holding
    Completion Date: June 14, 2023
    Summary: The purpose of this PIA is to amend an agreement between ICES and an Indigenous Partner.
  1. ICES Data Holding: DR (Database Recovery)
    Completion Date: May 18, 2023
    Summary: The purpose of this PIA is to assess the privacy risks associated with transfer of ICES’ disaster recovery (DR) site to a new location.
  1. ICES Data Holding: BORN
    Completion Date: March 7, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the
    privacy risks associated with a proposed amendment to the controlled use data holding titled BORN. The amendment involves collection of additional variables from CHEO and extending the data timeframe to March 31, 2021, from the current timeframe of March 31, 2018.
  2. ICES Data Holding: CLSA
    Completion Date: March 20, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the
    privacy risks associated with creating a new ICES Data Holding consisting of personal information about the changing biological, medical, psychological, social, and economic aspects of people’s lives as they age over a 20-year period, to assist with policy development around issues affecting an aging population.
  1. ICES Data Holding: CCM
    Completion Date: February 27, 2023
    Summary: The purpose of this Privacy Impact Assessment is to assess the privacy risks associated with a proposed amendment to an existing disclosure of data that ICES, acting as a prescribed entity, makes to Ontario Health, also acting as a prescribed entity. The nature of the proposed amendment is disclosure of additional variables.
  1. ICES Data Holding: OBI
    Completion Date: January 25, 2023
    Summary: The purpose of this PIA is to amend the process used for generating a crosswalk that enables linkage of personal health information (“PHI”) provided by the Ontario Brain Institute (“OBI”) with ICES data while protecting the privacy of Ontarians by keeping health numbers separate from other direct identifiers. This crosswalk supports a research partnership between OBI and ICES in which OBI discloses PHI on a per project basis to ICES for use in research and analytics conducted pursuant to the Personal Health Information Protection Act, 2004, SO 2004, c 3, Sched A and/or pursuant to ICES’ corporate objectives.
  2. ICES Data Holding: Indigenous data holding
    Completion Date: January 26, 2023
    Summary: The purpose of this PIA was to assess a request for ICES to collect data from an Indigenous partner.
  1. ICES Data Holding: Indigenous data holding
    Completion Date: November 8, 2022
    Summary: The purpose of this PIA was to assess a request for ICES to collect data from an Indigenous partner.
  2. ICES Data Holding: IRCC
    Completion Date: November 24, 2022
    Summary: The purpose of this PIA was to assess a request to amend governance of ICES’ handling of personal information disclosed to it by Immigration, Refugees, and Citizenship Canada for use in research and statistical purposes by ICES and to add variables.
  3. ICES Data Holding: DATIS
    Completion Date: November 30, 2022
    Summary: The purpose of this PIA was to assess a request to amend DATIS by adding variables and amending the list of participating data custodians.
  4. ICES Data Holding: IMPACT
    Completion Date: November 30, 2022
    Summary: The purpose of this PIA was to assess a request to create a new ICES Data Holding concerning the diagnosis, treatment, outcomes and healthcare utilization of Ontario adolescents and youth with cancer for use by ICES for its functions as a prescribed entity for the purposes of section 45 of the Personal Health Information Protection Act, 2004, including analysis or compilation of statistical information with respect to the management of, evaluation or monitoring of, the allocation or resources to or planning for all or part of the health system; research conducted by ICES; and research conducted by third party researchers.
  1. ICES Data Holding: GEMINI
    Completion Date: October 4, 2022
    Summary: The purpose of this PIA was to assess a request to amend the existing ICES Data Holding GEMINI by updating the data variables.
  1. ICES Data Holding: Canadian COVID-19 Emergency Department Rapid Response Network: Real-World Vaccine Effectiveness and Duration of Protection in Special Populations
    Completion Date: September 1, 2022
    Summary: The purpose of this PIA is to create a new ICES Data Holding consisting of an Ontario-specific COVID-19 registry that includes information about suspected and confirmed COVID-19 patients who present to Canadian Emergency Departments, including their health outcomes and vaccination data, to be used to support observational studies about patients with suspected or confirmed COVID-19 to generate research capacity and initiate a rapid knowledge-to-action cycle to inform responses to the evolving COVID-19 pandemic, and to help plan for the next pandemic.

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