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Resources for Engaging Public & Patients in Research
Whether you are specifically planning for some type of engagement in research or planning a full integrated knowledge translation project, your audience and stakeholder are core to your process. This resource page lists a variety of tools and trainings tailored to an ICES audience.
Resources
Plain language thesaurus
Trainings
Planning and grant-writing
Engaging the public and patients
Engaging communities
Mobilizing
ICES Plain Language Thesaurus
This Plain Language Thesaurus can help you improve communication of ICES research to the public and communities.
It compiles words, phrases, and sentences commonly used in ICES reports and provides plain language synonyms for these, including examples of how to use them in a sentence.
Additional resources to enhance communication
with public audiences
The Public & Community Engagement office can provide guidance from project inception to the dissemination of results.
Provides tips and examples for using active voice, present tense, chunking, and other principles of plain language communication.
This presentation from ICES’ Research & Analysis rounds defines knowledge translation and introduces knowledge translation processes. It highlights the importance of, and provides training on, plain language.
CIHR Patient engagement training
CIHR offers four free e-modules:
- 20-minute module that defines and introduces “public engagement”
- 35-minute module that describes how patients can be involved in each research process step (and includes links to tangible tools)
- 15-minute module that provides an overview of considerations for starting points
- 35-minute module that outlines considerations and logistics for recruiting partners and provides tips for recognizing tokenism and addressing power imbalances
SickKids Knowledge Translation training
Looking for more formal training in knowledge translation? The SickKids Knowledge Translation program offers several certificate courses that are tailored to meet different types of knowledge translation needs.
Planning and grant-writing
This article walks through a list of key questions to assess the knowledge translation components in your grant proposal.
This template can assist with the development of an integrated knowledge translation plan for your research project. Two learning modules are linked within the resource for more support.
This template can guide you through key questions and considerations for designing your public engagement plan.
Once you are ready to start recruiting for a longer-term engagement council or group, review this draft work plan template that outlines steps to consider.
An ICES guide for what to consider when deciding how to compensate public or patient partners engaged in your research.
Engaging
Dr. Muhammad Mamdani speaks about integrated knowledge translation at Evaluative Clinical Sciences Rounds. He describes best practices and principles for stakeholder engagement in the context of an ICES project.
This article provides concrete suggestions for actioning best practices.
This guidebook describes numerous tools and techniques for working in groups and facilitating meetings or workshops.
This guidebook describes 28 different methods/models of engagement (e.g., advisory council, process, digital storytelling, etc.). Methods are sorted into the level of engagement based on the IAP2 Framework for Public Participation.
This guidebook introduces principles for reducing power imbalances, recruiting diverse populations, reducing barriers to participation, etc. It outlines the pros and cons of different engagement methods from this lens.
This tool from McMaster University can be used to evaluate public and patient engagement.
Mobilizing
This presentation from ICES’ 2022 Research Forum defines “end-of-grant” vs “integrated” knowledge translation and outlines key considerations to develop your approach and content. ICES PAC members also weigh in on how to tailor both written and visual content for public audiences.
This article advises on how to report on public engagement activities in manuscripts.
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