{"id":17363,"date":"2024-02-06T15:09:14","date_gmt":"2024-02-06T20:09:14","guid":{"rendered":"https:\/\/www.ices.on.ca\/?post_type=private_project&#038;p=17363"},"modified":"2025-02-28T09:15:44","modified_gmt":"2025-02-28T14:15:44","slug":"rett-syndrome-rare-disease-rapid-report","status":"publish","type":"private_project","link":"https:\/\/www.ices.on.ca\/fr\/services-for-researchers\/all-projects\/private-sector-projects\/rett-syndrome-rare-disease-rapid-report\/","title":{"rendered":"Rett syndrome rare disease rapid report (RDRR)"},"content":{"rendered":"<p><strong>Client:<\/strong> IQVIA Solutions Canada Inc.<\/p>\n<p><strong>Project ID:<\/strong> P2023-185\/ 2024 0970 367 000<\/p>\n<p><strong>Research Question\/Objectives:<\/strong> The client is looking to gain better understanding of the epidemiology and burden of disease for Rett Syndrome, as well as the healthcare utilizations of patients with Rett Syndrome.<\/p>\n<p><strong>Objectives:<\/strong><\/p>\n<ul>\n<li>Describe the demographics and clinical characteristics of patients with a diagnosis of Rett Syndrome in Ontario from 2018 \u2013 2023<\/li>\n<li>Describe the incidence and prevalence of Rett Syndrome in Ontario from 2018 \u2013 2023<\/li>\n<li>Describe the healthcare resource utilization (HCRU) of patients with Rett Syndrome in Ontario from 2018 \u2013 2023<\/li>\n<\/ul>\n<p><strong>Results:<\/strong> Completed<\/p>\n<p><strong>Results:<\/strong> March 2025<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Client: IQVIA Solutions Canada Inc. Project ID: P2023-185\/ 2024 0970 367 000 Research Question\/Objectives: The client is looking to gain better understanding of the epidemiology and burden of disease for Rett Syndrome, as well as the healthcare utilizations of patients with Rett Syndrome. Objectives: Describe the demographics and clinical characteristics of patients with a diagnosis [&hellip;]<\/p>\n","protected":false},"template":"","organization_type":[],"project_status":[105],"response_type":[],"class_list":["post-17363","private_project","type-private_project","status-publish","hentry","project_status-completed"],"acf":{"project_id":"P2023-185\/ 2024 0970 367 000","project_id_year":2023,"ices_scientist":"","principal_investigators":null,"knowledge_user":"","client":"","objectives":"","results":"","availability_of_results":"","pia_approved":null,"infographic":"","sitecore_item_id":"","sitecore_item_name":"","sitecore_field_values":""},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Rett syndrome rare disease rapid report (RDRR) | ICES<\/title>\n<meta name=\"description\" content=\"Client: IQVIA Solutions Canada Inc. 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