{"id":8618,"date":"2022-09-23T00:00:00","date_gmt":"2022-09-23T04:00:00","guid":{"rendered":"https:\/\/icesontario.wpengine.com\/announcements-and-events\/younger-middle-aged-adults-with-amyotrophic-lateral-sclerosis-and-their-family-caregivers-an-exploration-of-their-experiences-and-perspectives-a-study-protocol\/"},"modified":"2023-06-14T09:29:50","modified_gmt":"2023-06-14T13:29:50","slug":"younger-middle-aged-adults-with-amyotrophic-lateral-sclerosis-and-their-family-caregivers-an-exploration-of-their-experiences-and-perspectives-a-study-protocol","status":"publish","type":"announce_or_event","link":"https:\/\/www.ices.on.ca\/fr\/announcements-and-events\/younger-middle-aged-adults-with-amyotrophic-lateral-sclerosis-and-their-family-caregivers-an-exploration-of-their-experiences-and-perspectives-a-study-protocol\/","title":{"rendered":"Younger middle-aged adults with amyotrophic lateral sclerosis and their family caregivers: an exploration of their experiences and perspectives \u2013 a study protocol"},"content":{"rendered":"<p>Please join us &#8230;<\/p>\n<p><strong>When:<\/strong> Thursday, September 29, 2022, 12&#x2013;1 p.m.<\/p>\n<p><strong>Where:<\/strong> Join Zoom Meeting <a href=\"https:\/\/us06web.zoom.us\/j\/82435258546\" title=\"opens external link\" target=\"_blank\" rel=\"noopener\">https:\/\/us06web.zoom.us\/j\/82435258546<\/a>, Meeting ID: 824 3525 8546. Meeting password: 1234 <strong>OR<\/strong> in person in G Wing, 1st Floor (Linton Boardroom)<\/p>\n<p><strong>Who: <\/strong>Andrea Parks, MD, FRCPC; Neuromuscular Fellow, Sunnybrook Health Sciences Centre<\/p>\n<p><strong>Topic: <\/strong>Younger middle-aged adults with amyotrophic lateral sclerosis and their family caregivers: an exploration of their experiences and perspectives &#x2013; a study protocol<\/p>\n<p><strong>Learning Objectives: <\/strong><\/p>\n<ol>\n<li>Outline a scoping review protocol to fully map what is currently known about the impact of age and life stage on the experience of amyotrophic lateral sclerosis (ALS)<\/li>\n<li>Describe a plan for qualitative inquiry to further understand the experiences of individuals diagnosed with ALS in younger middle-age and their family caregivers including:\n<ul class=\"list-style\">\n<li>A phenomenological study seeking to understand the illness and care experiences of younger middle-aged adults with ALS<\/li>\n<li>A grounded theory study exploring the social processes that underpin family caregivers&#x2019; experiences following an ALS diagnosis in a family member<\/li>\n<\/ul>\n<\/li>\n<\/ol>\n<div class=\"row\">\n<div class=\"four columns\"><img loading=\"lazy\" decoding=\"async\" height=\"338\" alt=\"Andrea Parks\" width=\"300\" src=\"\/wp-content\/uploads\/2023\/05\/Andrea-Parks.png\"> <\/p>\n<p><span class=\"grey\" style=\"font-size: 12px; font-weight: bold; display: block; color: #5b5656;\">Andrea Parks<\/span><\/p>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>Please join us &#8230; When: Thursday, September 29, 2022, 12&#x2013;1 p.m. Where: Join Zoom Meeting https:\/\/us06web.zoom.us\/j\/82435258546, Meeting ID: 824 3525 8546. Meeting password: 1234 OR in person in G Wing, 1st Floor (Linton Boardroom) Who: Andrea Parks, MD, FRCPC; Neuromuscular Fellow, Sunnybrook Health Sciences Centre Topic: Younger middle-aged adults with amyotrophic lateral sclerosis and their [&hellip;]<\/p>\n","protected":false},"template":"","migration-helper-automated":[],"migration-manual":[],"class_list":["post-8618","announce_or_event","type-announce_or_event","status-publish","hentry"],"acf":{"ices_scientist":[],"research_program":[],"site":[6733],"journal_article":[],"news_release":[],"infographic":[],"sitecore_item_id":"600BE51C-66BF-4CFF-9F93-55EE2E07DF61","sitecore_item_name":"Evaluative-Clinical-Sciences-Rounds-September-29-2022","sitecore_field_values":"{\n  \"Show in sitemap\": null,\n  \"Show in navigation\": null,\n  \"Content\": \"<p>Please join us ...<\/p>n<p><strong>When:<\/strong> Thursday, September 29, 2022, 12&ndash;1 p.m.<\/p>n<p><strong>Where:<\/strong> Join Zoom Meeting <a href=\"https:\/\/us06web.zoom.us\/j\/82435258546\" title=\"opens external link\" target=\"_blank\">https:\/\/us06web.zoom.us\/j\/82435258546<\/a>, Meeting ID: 824 3525 8546. Meeting password: 1234 <strong>OR<\/strong> in person in G Wing, 1st Floor (Linton Boardroom)<\/p>n<p><strong>Who: <\/strong>Andrea Parks, MD, FRCPC; Neuromuscular Fellow, Sunnybrook Health Sciences Centre<\/p>n<p><strong>Topic: <\/strong>Younger middle-aged adults with amyotrophic lateral sclerosis and their family caregivers: an exploration of their experiences and perspectives &ndash; a study protocol<\/p>n<p><strong>Learning Objectives: <\/strong><\/p>n<ol>n    <li>Outline a scoping review protocol to fully map what is currently known about the impact of age and life stage on the experience of amyotrophic lateral sclerosis (ALS)<\/li>n    <li>Describe a plan for qualitative inquiry to further understand the experiences of individuals diagnosed with ALS in younger middle-age and their family caregivers including:n    <ul class=\"list-style\">n        <li>A phenomenological study seeking to understand the illness and care experiences of younger middle-aged adults with ALS<\/li>n        <li>A grounded theory study exploring the social processes that underpin family caregivers&rsquo; experiences following an ALS diagnosis in a family member<\/li>n    <\/ul>n    <\/li>n<\/ol>n<div class=\"row\">n<div class=\"four columns\"><img height=\"338\" alt=\"Andrea Parks\" width=\"300\" src=\"~\/media\/FFD7B6AA931A41DA984E2C736FD66CC5.ashx\" \/> <br \/>n<p><span class=\"grey\" style=\"font-size: 12px; font-weight: bold; display: block; color: #5b5656;\">Andrea Parks<\/span><\/p>n<\/div>n<\/div>\",\n  \"Title\": \"Younger middle-aged adults with amyotrophic lateral sclerosis and their family caregivers: an exploration of their experiences and perspectives \u2013 a study protocol\",\n  \"Short title\": null,\n  \"Teaser image\": \"<image mediaid=\"{E1BCE7CE-7B52-4F43-8D31-5AFFC60356E8}\" mediapath=\"\/Images\/ovoid-shape\/ovoid-1\" src=\"~\/media\/E1BCE7CE7B524F438D315AFFC60356E8.ashx\" alt=\"healthcare ovoid\" height=\"\" width=\"\" hspace=\"\" vspace=\"\" \/>\",\n  \"Image\": \"<image mediaid=\"{E1BCE7CE-7B52-4F43-8D31-5AFFC60356E8}\" mediapath=\"\/Images\/ovoid-shape\/ovoid-1\" src=\"~\/media\/E1BCE7CE7B524F438D315AFFC60356E8.ashx\" alt=\"healthcare ovoid\" height=\"\" width=\"\" hspace=\"\" vspace=\"\" \/>\",\n  \"Summary\": \"Join us Thursday, September 29 for Evaluative Clinical Sciences Rounds when Dr. Andrea Parks reviews protocol to map what is known about the impact of age and life stage on the experience of ALS.\",\n  \"ICES Scientists\": null,\n  \"ICES Locations\": \"{4FCAABBA-14A5-42E6-8F33-BC6C2F1D9908}\",\n  \"Research Programs\": null,\n  \"Posted Date\": \"20220923T000000\"\n}","previous_url":"https:\/\/www.ices.on.ca\/Newsroom\/Announcements-and-Events\/2022\/Evaluative-Clinical-Sciences-Rounds-September-29-2022"},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>ICES | Younger middle-aged adults with amyotrophic lateral sclerosis and their family caregivers: an exploration of their experiences and perspectives \u2013 a study protocol<\/title>\n<meta name=\"description\" content=\"Please join us ... 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